University of Phoenix Family Member of A Child Who Has a Disability Essay

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User Generated

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Cergglsnpr

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Health Medical

School

University of Phoenix

Description

Write a reflection essay on the experience of being a family member of a child who has a disability

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Interview an immediate family member of a person with a disability. This may be an adult sibling, a mother or a father. Make sure this is a person that you know pretty well and they are aware of the questions you will be asking them before they agree to be interviewed. Let them know that it will be for a school paper and that, confidentiality will be maintained. DO NOT use real names -change the names of all the people involved for confidentiality purposes. General Questions o Describe the family (Parents, children, other people who live with them, where do they live). o Describe the child with a disability (age, birth order, disability, interests). o Who are you interviewing? (Parent/ Adult Sibling) Parent Questions o When and how did you find out that your child had a disability? Can you describe your experience and how you felt? o How has the experience of having a child with a disability impacted your life? o If you have other children, how is parenting a child with a disability different than parenting your other children? o What services has your child received? What has made the greatest impact? o Can you describe your relationship with your child? o If you have other children, can you describe the relationship between your child with a disability and his or her siblings? o What sort of support network do you have? o Describe an experience in which you were proud of your son or daughter. o As a new COTA is there any advice that you have for me? Sibling Questions o What is your relationship with your brother or sister? o What is your earliest memory of knowing that your brother or sister had a disability? o How has the experience of having a brother or sister with a disability impacted your life or you as a person? o How has having a sibling with a disability affected your relationship with your parents? o While growing up what differences did you notice between yourself and your friends who did not have siblings who had disabilities? o Describe an experience when your brother or sister embarrassed you. o Describe an experience when you were proud of your brother or sister.
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Running head: REFLECTION

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Reflection
Name
Institution

REFLECTION

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My interview was with a single mother who has a girl named Kate, who has been living
with Down syndrome. In her case, she lives alone and works as a nurse in a local hospital. The
mother has managed to buy a house, and they live near a small town. The daughter is eight years
and happens to be a very jovial girl. She has many interests, such as athletics and singing, but in
her case, she enjoys acting more. I sat down with Jane, her mother, in the effort to get a hint of
her journey so far in raising a child who has been diagnosed with Down syndrome.
As we started the interview, I asked how she found that her daughter had Down
syndrome. In her case, she asserted that it was in one of her regular visits to the doctor. The
doctor told her that she would have a child with the condition. At that moment, she felt as if her
world had been torn apart. She even tol...