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Parental Caregivers' Description of Caring for Children with Intractable Epilepsy Author: Mary Poyner Reed Persistent link: http://hdl.handle.net/2345/3153 This work is posted on eScholarship@BC, Boston College University Libraries. Boston College Electronic Thesis or Dissertation, 2013 Copyright is held by the author, with all rights reserved, unless otherwise noted. Boston College William F. Connell School of Nursing PARENTAL CAREGIVERS‘ DESCRIPTION OF CARING FOR CHILDREN WITH INTRACTABLE EPILEPSY a dissertation by MARY POYNER REED submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy May 2013 © Copyright by MARY POYNER REED 2013 Abstract PARENTAL CAREGIVERS‘ DESCRIPTION OF CARING FOR CHILDREN WITH INTRACTABLE EPILEPSY Mary Poyner Reed, RN, MSN, CNRN, ANP Judith Vessey, RN, PhD, DPNP, MBA, FAAN Dissertation Committee Chair, William F. Connell School of Nursing The objective of this study was to describe the parental perspective of caring for a child with intractable epilepsy. The purpose of this study was twofold: (1) to describe the caregiver transition from caring for a healthy child to caring for a child with intractable epilepsy, and (2) to study families that provide caregiving, to identify the challenges, and learn how they address the intricacies and nuances of caring for a child with intractable epilepsy. The specific research questions that guided this study were: (1) What do parents of children with intractabl ...
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